I am excited!
Levi has an almost official diagnosis of PDD...sensory processing disorder along with mild autism.
This has not been an easy process to get through emotionally. No one wants their kid to be disabled in any way. No one wants their kid to need help to succeed. No one likes the thought of their kid being labeled.
BUT!
Now that we have the label, help is on the way! We're not crazy. Other people can see what we are seeing, and we agree with their thoughts. We have a team, a big team, of people who want to help us help Levi. There are a ton of resources opened up to us with this diagnosis, and probably even more when it becomes official. We have access to experts in dealing with these kinds of issues. Experts who have treated and helped lots of children and parents, who have knowledge and tools that Brian and I just don't have. Yet.
I have signed up for a 3-part workshop on autism offered through a local college (not the one I am enrolled in). Levi is about to start therapy with a speech therapist, an occupational therapist, and a special education integration teacher (??not sure what this one is yet??). I have found a monthly support group very close to home. He will be enrolled in Head Start as soon as possible (which isn't right away...there is a waiting list and 4 year olds go first).
Help is on the way, and I am feeling very optimistic. I was not feeling this way just a couple days ago.
Praise God!!!
ReplyDeleteThis all sounds very promising Donna.
Praise God!!!!!
ReplyDeleteSo thankful you have a diagnosis. Not knowing is the toughest part.
ReplyDeleteYou are a great mom Donna!
Welcome to the club Donna!
ReplyDeleteMy son has PDD-NOS, and he's 12 now. A lot of how we've worked with him has been hit and miss, but we do find things that work in helping him deal with things that are harder for him that for others.
Certainly not the dream that a parent has for their child, but you wouldn't trade this one for a million "normal" kids. My son still likes to hold my hand, get hugs, etc. And he's taller than I am.
This is only the beginning...but the biggest hurdle. Go Momma! You're an awesome mom :D
ReplyDelete